Patient Services
Consultation with our professional patient services staff of nurses and masters level social workers is available for patients in their homes, via email and phone throughout the course of the disease.
Adaptation & Equipment Program offers the evaluation of equipment needs and home adaptations that can preserve energy and independence, identification of the best source for recommended devises and adaptations, and a loan pool of primarily used equipment that can be used if other sources are not available.
Resource & Referral lists of medical professionals, service providers and vendors that have experience with ALS are maintained by The Chapter.
Education through materials and programs for patients, care givers and families.
Support groups for ALS patients, families, caregivers, and survivors meet monthly throughout Kansas, Nebraska, and Western Missouri. These groups present the opportunity to learn from professionals in fields related to the management of ALS. As the needs change the latest information is made available. These meetings also provide support and fellowship with others who are experiencing ALS.
Clinic
ALS Clinics provide a place for patients and families to see the best ALS specialists in their community and they provide another form of support for patients and their families.
ALS Centers of Excellence are clinics, designated by the National office, that provide state-of-the-art care and clinical management of ALS through:
- The involvement of all necessary healthcare disciplines in the care of the ALS patient and family
- The offering of care from a team of people specially trained to meet the needs of those living with ALS, regardless of the ability to pay whenever possible; when not possible, providing advice to treating physician
- Collaborative work among Centers to enhance ALS patient care and techniques
These centers also actively engage patients to participate in drug trials.
**All the information here has come from The Keith Worthington Chapter web page as well as the National Association web page.
