The Crowley's in KC

About Me:

I'm Sarah, my husband is Dustin and we live in Kansas City, MO. Dustin is a PhD student at the University of Kansas and I work for The ALS Association Keith Worthington Chapter. We have two dogs - Clover and Gus, and a cat - Molly.
This is our humble life.


Walk to Defeat ALS™

On October 8 I am walking in the Kansas CIty Walk to Defeat ALS™ in memory of my grandfather Clarence Leo Carroll who died of ALS in 1966.

My goal is to raise $1,000. Please consider supporting me.


Friends' Blog:

Chels182
My Life as a Made for TV Movie
News from the 'White House'
Picture this Life
rachel: words & things
Russ and Emily
Sassafras Habitat
Shane Life
Tales of the Logans
The Adventures of Oliver
The Gingered Whisk
The Journey...
The Perfect Blog Title
The Tilleys
ZimmerBaby

Friends' Businesses:

Nicely Drawn
The Happy Cake

Other Sites I like:

ALS Association, Keith Worthinton Chapter
Kansas City Symphony
Brad's Deals
Jason Domingues Photography





Sarah Crowley | Create Your Badge


Patient Services

 

Consultation with our professional patient services staff of nurses and masters level social workers is available for patients in their homes, via email and phone throughout the course of the disease.

 

Adaptation & Equipment Program offers the evaluation of equipment needs and home adaptations that can preserve energy and independence, identification of the best source for recommended devises and adaptations, and a loan pool of primarily used equipment that can be used if other sources are not available.

Resource & Referral lists of medical professionals, service providers and vendors that have experience with ALS are maintained by The Chapter.

Education through materials and programs for patients, care givers and families.

Support groups for ALS patients, families, caregivers, and survivors meet monthly throughout Kansas, Nebraska, and Western Missouri. These groups present the opportunity to learn from professionals in fields related to the management of ALS. As the needs change the latest information is made available. These meetings also provide support and fellowship with others who are experiencing ALS.

Clinic

ALS Clinics provide a place for patients and families to see the best ALS specialists in their community and they provide another form of support for patients and their families.

ALS Centers of Excellence are clinics, designated by the National office, that provide state-of-the-art care and clinical management of ALS through:

 

These centers also actively engage patients to participate in drug trials.

**All the information here has come from The Keith Worthington Chapter web page as well as the National Association web page.

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